TBRS Community

Register here for the 2021 TBRS Virtual Family Conference! September 24-26

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Tatton Brown
Rahman Syndrome

TBRS Community

Overview

About TBRS

Tatton Brown Rahman Syndrome is a rare disease caused by variants in the DNMT3A gene. To date, roughly 150 people have been diagnosed with TBRS.

The TBRS Community is the only organization in the world that focuses solely on Tatton Brown Rahman Syndrome.

We’re in it together

Our Mission

The Tatton Brown Rahman Syndrome Community aims to support all families affected by TBRS and advance research toward interventions.

Advocacy

Make a difference

Join our volunteers to contribute lasting benefits for those with TBRS.

Daniel

Member

Daniel

Olivia

Member

Olivia

Kira

Member

Kira

Lucas

Member

Lucas

“Attending the annual conference was more than an opportunity for our family to learn about TBRS. It connected us with other TBRS families and opened us up to a community that has been an incredible resource and support system!”

Kacee Richter
Mother of child with TBRS

“As a family who had lived without a diagnosis for 18 years for our daughter Eve, attending our first TBRS conference was like gaining a new family. A family that really and truly understood the ins and outs of daily life as we had been living it.”

Michelle Piironen
Mother of child with TBRS

“I felt like I had finally made it HOME! The amount of weight that was lifted from my shoulders was immense. The pieces of the puzzle finally fell into place.”

Cathy McClenahen
Mother of child with TBRS

“The support and love that we have in this group is immeasurable. It truly was like finding friends and family from around the world we never knew we had!”

Erin Rooker
Mother of child with TBRS
TBRS Virtual Family Conference

09 24
2021

Virtual Event

TBRS Virtual Family Conference

09/24/21 - 09/27/21

3rd Annual Stryker Strong Golf Tournament

09 24
2021

Highland Park Golf Course

3rd Annual Stryker Strong Golf Tournament

09/24/21 - 09/24/21

Stay informed

Dr. Kate Tatton Brown

Kate, as part of a team of scientists and clinicians, first discovered DNMT3A gene alterations as a cause of an overgrowth-intellectual disability syndrome in 2014.

Dr. Kate Tatton Brown

I am committed to working with families so we better understand TBRS and to ensure the very best care is provided for children and adults with TBRS across the world.